A principal source of advice, support and information on psoriasis and psoriatic arthritis
A registered charity no: 1118192
A registered charity no: 1118192
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) was founded in 2007, as a joint venture between the Psoriatic Arthropathy Alliance (PAA) (Reg Charity No: 1051169), and the Psoriasis Support Trust (PST) (Reg Charity No: 1088359), with the aim of merging the original charities into a single entity, to establish the principal resource of information and help for people with psoriasis and psoriatic arthritis in the UK.
The Psoriatic Arthropathy Alliance (PAA)
The PAA was founded by David and Julie Chandler in 1993, as an organization specifically for people with psoriatic arthritis. David, who has both psoriasis and psoriatic arthritis, was forced to retire from commercial business at the age of 36 through ill-health caused by the conditions.
David and Julie soon discovered that the amount of information and knowledge regarding the disease was minimal, and it was Julie, David’s wife, who decided that she could best help David by forming an active group of fellow sufferers to provide much-needed help and support to her husband and also those in a similar situation.
The PAA, although primarily set up for psoriatic arthropathy, moved into psoriasis as a consequence of demand by its members. It quickly became well established and respected amongst the medical profession and patients.
The PAA was supported by a team of unpaid volunteers, to help people with psoriasis and psoriatic arthritis. The team included clinical specialists from the fields of dermatology, rheumatology, immunology, physiotherapy, nursing, scientific and pharmaceutical experts, together with input from the world of business and public relations.
Its main activity was an education and information programme which included the Skin ‘n’ Bones Connection journal, Psoriatic Care Fact File and various information leaflets and booklets.
The Psoriasis Support Trust (PST)
The PST was set up in March 2001 by Charles Peel to assist people with psoriasis. Since that time, with the assistance of medical advice, the trustees reviewed the various treatments available to people with psoriasis. The trustees decided to concentrate on the effects of stress on psoriasis and how one can deal with the psychological effects the condition has on individuals. The Trust supported via a grant the development work of a team, headed by Prof Christopher Griffiths, at the Department of Medicine (Dermatology) at Hope Hospital, University of Manchester. This work led to the development of a programme that assists people with psoriasis to deal with their condition in a more effective and positive manner. In addition, the Trust also provided the Psoriatic Arthropathy Alliance (PAA) with some financial assistance to consolidate its work with patients.
The Psoriasis and Psoriatic Arthritis Alliance (PAPAA)
The essence and thrust of both original charities continues within PAPAA and is a combination of the strengths and activities that have been the success stories for both charities.
PAPAA knows only too well the day-to-day struggles of living with a long-term medical condition and problems that are faced by people with psoriasis and psoriatic arthritis, and as an organisation is working to keep the patient-centred voice alive.
This continuity and link offers the focus and understanding that is needed in order to provide services that patients in the 21st century need, whether information, a listening ear or a disease management programme. PAPAA aims to provide traditional patient support as well as new innovative approaches that a changing healthcare environment requires.