Press Releases from PAPAA

New patient information leaflet available
Fri, 20 Dec 2013

PAPAA made available today the latest in its range of information leaflets aimed at people with psoriasis.

Psoriasis is a long-term scaling disease of the skin, which affects 2% – 3% of the UK population. It appears as red, raised scaly patches known as plaques. Treatment for mild psoriasis involves the use of creams and ointments applied to the skin, but if the condition does not respond, gets worse, or is termed moderate people are often referred for phototherapy.

Phototherapy or light therapy is the use of ultraviolet light, and for psoriasis either ultraviolet A or ... Read More

PAPAA continues to be Information Standard compliant
Wed, 08 May 2013

We are pleased to announce that for a second year running we have continued to demonstrate that our service delivery complies with the requirements of The Information Standard, this follows a recent surveillance review.

Across England, thousands of organisations produce health and social care information for the public which varies greatly in terms of quality and reliability.  So how can the public tell whether information is truth or myth ?

The Information Standard is a certification scheme for all organisations producing evidence-based health and care information for the... Read More

Ichthyotherapy for psoriasis - Your help needed?
Fri, 11 Feb 2011

Can you help us?

In response to recent enquiries to our helpline we are gathering data about the use of the ‘Doctor Fish of Kangal’ or ichthyotherapy.

Background

The ‘Doctor Fish of Kangal’ are Garra Rufa or Red Barb fish and belong to the carp family and are found in the Kangal Springs in Sivas, Turkey. The springs were a kind of reed-bed until 1917, when by chance a shepherd who was wounded on his foot saw his wound healed by the water of the spring.

This fact got the attention of the public and primitive pools were built in... Read More

New psoriasis eCommerce shop launched by PAPAA
Wed, 14 Jul 2010

The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) has launched a new secure eCommerce site http://www.psoriasis-shop.org . Visitors can now order free information, pay and renew their subscription, make donations and buy from a selection of publications aimed at providing practical information on these conditions.

A spokesperson for the charity said “this facility has been provided following extensive feedback from members and existing website users; this service is an extension of our main site http://... Read More

Experts turn to web to combat distressing skin disease
Mon, 23 Mar 2009

People experiencing psoriasis may get relief from their symptoms and the psychological distress they can cause through a new web-based therapy programme.

Skin experts and psychologists at The University of Manchester have teamed up to design a computer program known as `electronic Targeted Intervention for Psoriasis' or eTIPS to help sufferers cope with and manage their condition better.

“Psoriasis is a chronic skin disease that usually appears as patches of raised, red scaly plaques anywhere on the surface of the skin. It is an inflammatory disease believed to be related to... Read More

eTIPs – electronic-Targeted Intervention for Psoriasis
Mon, 01 Dec 2008

Psoriasis affects 2-3% of people in the UK and can create both physical and psychological distress. Psychological discomfort is made worse by the visible nature of the condition whereby some people avoid exposing their skin and avoid social activity due to embarrassment. The University of Manchester has embarked on a PAPAA (Psoriasis and Psoriatic Arthritis Alliance) funded study to help people manage psoriasis better.

The research team includes skin and psychology experts Professor... Read More

Psoriasis - a summer misery for a silent minority
Wed, 25 Jun 2008

For many of us the summer is a time to think about taking a break, enjoying long hot days in the sun, sitting on a beach or swimming in the sea.

But for people living with a skin disease called psoriasis the summer is often viewed with dread. Psoriasis is a skin condition which affects 2% of the population and takes the form of scaly, silver scales on the skin which when removed show very red sore angry skin.

For many this unsightly rash makes it impossible to be able to wear shorts or T-shirts because of the way others view people with this disease. Embarrassment and a... Read More

Website launched for people with psoriasis and psoriatic arthritis
Thu, 01 May 2008

New in-depth informative website launched for people with psoriasis and psoriatic arthritis

UK charity, the Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is launching its new website www.papaa.org under the banner of The Principal Source of Information for Psoriasis and Psoriatic Arthritis. PAPAA is providing an up-to-date resource that will give people with the latest information about the condition along... Read More